My Personal Entries

Friday 10.21.11:

          Lasted 10 minutes: 9:50pm-10:00pm- was in the shower when it began-he said “the shower (drops) started to feel ‘weird’ and he knew he was starting to have it. He mentioned this is the first time he’s had it in the shower. Breathing normally, not fast- Heart rate 76 BPM,-took HR 3 times and was consistent- Yesterday went to bed at 11:00 pm- he woke up at 5:45 am- went to work has one cup of coffee- during lunch, had left over pasta, carrot, apple, cheese crackers, and 2 lemon cookies-throughout the day he had 6-8 Gatorades and bottled waters. He worked until 3:30 pm. Came home around 3:45 pm- once at home BM, we went for a bike ride and then he went to play tennis with his dad, came home ate dinner-8:45pm- leftover turkey and mac and cheese- watched TV. Came to me after shower and told me he was having one of his “things”, I turned off the fan and had him lay down in the living room- his pulse was 76 BPM, he was warm (considering he just got out of the shower and was dried off) and pink, his pupils were reactive and not dilated nor constricted, his breathing was calm and consistent. He mentioned that this “wasn’t a bad one, about a 5/10”- “still functional”-“Last time, I thought I was going to ‘fall out’” He is currently in the bed about to go to sleep, he has to wake up in the morning to go to work, again. He is working a shut down right now and he’s working over time. He’s stressed at work and I know he’s tired. We’re still in the process of figuring out what triggers this.

10.30.11

70bpm

Pupils 2cm in dark room

98.3 f

Started in shower, (2 mins) dried off and lay on living room floor. Lasted about 7-8 mins.  He was taking deep breaths to concentrate so about 8 breaths per minute. He had left over dirty rice for breakfast. Nothing to drink, yet.

Yesterday we woke up I got him 2 chocolate covered donuts and a coffee w/ cream and sugar then he worked on the Miata, he was frustrated because what he’s been working on for 2 wks wasn’t going according to plan. So he came in and had lunch of turkey and cheese sandwich, Pringles, grapes, and carrots. We ran to the dollar store and auto parts place and came home.  We got ready and went to a hockey game. We had pretzels and  a coke on the way to the game and he had 2 hotdogs at the game along with a Dr. Pepper. We enjoyed the game and left for home, we stopped at Bucee’s where we got a coke and shared a sausage and cheese plate. We got home around 1130 and watched TV and fell asleep in the living room. We woke up around 1030 and started watching TV  He’s drinking water now and ate 3 mini snickers bars this morning. BM @ 1:15

11.15.11 I thought he may have another spell tonight; he worked OT tonight and left straight from work to class. He didn’t get home until 8:30! He was hungry, so he ate the Thanksgiving Dinner I bought him at work! Around 10, he stated that he wanted to take a shower, but he was feeling weird, like he may have “one”. He laid on the floor for about 10 mins and said he still felt weird; he couldn’t describe it. He took a shower, when he got out he still felt it. He is now sleeping, it’s almost 11.

Concerned Wife

Hi, I'm a current Nursing Student who is stunned by the fact that my husband has a mystery disease that no one in the Houston-area seems to be aware of. I've started taking note of his symptoms just last month, but unfortunately this has been going on possibly before he could even express concern. His mom says around age 3, he started telling her that he felt weird and that everything seemed to be fast and small. It's happened throughout his life. The doctors have claimed he is on drugs, has anxiety attacks, has a thyroid problem, has a heart problem. With every new Doctor, comes a new diagnosis. We have been a couple for 4 1/2 years and I've seen this happen many times. He gets very quiet and seems to "zone out". His breathing changes, it slows down, he's concentrating on trying to stop it. He tells me to turn off all the unnessecary noise in the house (fans, washing machine, TV). He thinks things look and feel very small, normally his hands. When he does walk around, he claims he feels like he's running. When he talks, he feels like he's screaming. During some of his "spells" he seems to shake, like he's cold or having a small seizure. I've taken a few of his vital signs while this is happening. Typically his heart rate is around 70-75 beats per minute, Temperature is 98.7, his pupils are 2cm in a dim room. He is a very active guy; he plays tennis,likes to work out, works in the yard, and works on his cars. We live around alot of refineries and he currently works in one. He goes to night school after work. I think it's stress related, he seems to get them more after he's been sick or when he's stressed out. At first I thought it was a heart problem, as I listened to the doctor, but the more I'm around him, the less I think it's his heart.One night I happened to see a show about "Alice in Wonderland Syndrome", it seems to be VERY close to what he has. I also have thoughts about it being some form of Epilepsy. I will post the three entries on here from my personal notes. If anyone seems to have similar symptoms or knows what this could be, please comment.


Thank you!